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Privacy Policy

Privacy Policy

Last updated: March 27, 2026

Introduction

Welcome to our website dedicated to Sickle Cell Disease. We understand the importance of privacy, especially when dealing with sensitive health-related information. This Privacy Policy outlines how we collect, use, and protect your information when you visit and interact with our website. Our commitment is to ensure the privacy and security of your non-personally identifiable information while providing valuable resources and information.

Information Collected

When you visit our website, we automatically collect certain non-personally identifiable information about your device and your interaction with our site. This information helps us understand how our visitors use the site, allowing us to improve content and user experience. The types of information collected include:

  • IP Address: Your Internet Protocol address, which helps us understand your general geographic location and diagnose server problems.
  • Browser Type: Information about the web browser you are using (e.g., Chrome, Firefox, Safari), which helps us ensure compatibility and optimize display.
  • Operating System: Details about the operating system of your device (e.g., Windows, macOS, Android, iOS), used for similar purposes of compatibility and optimization.
  • Pages Visited: A record of the specific pages you visit on our site, the order in which you visit them, and the time spent on each page.
  • Referring/Exit Pages: The URL of the website you came from to reach our site and the URL of the website you visit after leaving our site.

This data is primarily aggregated and anonymized and is not used to identify individual users personally.

Cookies

Our website uses "cookies" to enhance your experience. Cookies are small text files that are placed on your device by a web server when you visit a website. They are widely used to make websites work more efficiently and to provide information to the website owners.

  • Purpose: Cookies help us remember your preferences, track site usage patterns, and provide a more personalized browsing experience. For example, they can help us remember if you've dismissed a certain notification or allow us to analyze which content is most popular.
  • Types of Cookies: We may use both session cookies (which expire once you close your browser) and persistent cookies (which stay on your device until they expire or you delete them).
  • Managing Cookies: You have the ability to accept or decline cookies. Most web browsers automatically accept cookies, but you can usually modify your browser setting to decline cookies if you prefer. However, this may prevent you from taking full advantage of the website.

Third-Party Services

We may utilize third-party services, such as analytics providers (e.g., Google Analytics), to monitor and analyze the use of our website. These services may collect information sent by your browser as part of a web page request, including cookies and your IP address. This information is used to track and examine the use of our website, to prepare reports on its activities, and share them with other Google services. Google may use the data collected to contextualize and personalize the ads of its own advertising network.

These third-party service providers have their own privacy policies addressing how they use such information. We encourage you to review their policies directly.

Advertising

We may partner with third-party advertising networks to display advertisements on our website or to manage our advertising on other sites. Our advertising partners may use cookies and web beacons to collect non-personally identifiable information about your activities on this and other websites to provide you with targeted advertising based upon your interests. If you wish to not have this information used for the purpose of serving you targeted ads, you may be able to opt-out through industry self-regulatory programs like the Digital Advertising Alliance (DAA) or the Network Advertising Initiative (NAI).

Children's Privacy (Under 13)

Our website is not intended for children under the age of 13, and we do not knowingly collect personally identifiable information from children under 13. If you are a parent or guardian and you believe that your child has provided us with personal information, please contact us immediately using the information provided below. We will take steps to promptly remove such information from our records.

Changes to This Privacy Policy

We may update our Privacy Policy from time to time. We will notify you of any changes by posting the new Privacy Policy on this page. We encourage you to review this Privacy Policy periodically for any changes. Changes to this Privacy Policy are effective when they are posted on this page.

Contact Us

If you have any questions about this Privacy Policy, please contact us: